Updates to the Central Data Repository of the Cohort Coordination Board

Earlier this month, updates were made to the Central Data Repository (CDR), managed by the Cohort Coordination Board (CCB). New studies have been added and improvements to the user interface have been introduced. 

The CDR offers a comprehensive collection of metadata from cohorts and trials across Europe focusing on infectious diseases with epidemic and pandemic potential. The repository is publicly accessible and supports data sharing and coordination in response to emerging health threats. Metadata is presented in Study ID Cards which include details such as the study name, design, participant numbers, enrolment dates, locations, population and setting. Studies can be explored using interactive filters and a map of Europe.  

New studies! 

The CDR continues to expand its coverage of infectious diseases. Recent updates include: 

• The addition of cohort studies on respiratory syncytial virus (RSV), in collaboration with the PIPELINE project 

• An update to cohort studies on mpox, gonorrhoea, and chlamydia 

Improved filters!  

A recent improvement to the CDR interface was the enhanced stratification of age categories, allowing users to identify important sub-populations by filtering for:  

• Infants (<1 year)  

• Children (1–11 years)  

• Adolescents (12–17 years)  

• Adults (18–64 years)  

• Elderly (≥65 years) 

You can access the CDR here. 

For further information on why the CDR was created and how to use it, please visit the CDR landing page here. 

Call for Collaboration: 

The Cohort Coordination Board encourages researchers, clinicians, and public health professionals to collaborate with the CDR, through data contributions, entry amendments, and project partnerships. To do so, please contact: ccb@ateneo.univr.it  

About the Cohort Coordination Board 

The Cohort Coordination Board is dedicated to fostering collaboration and data sharing in clinical research, particularly in the field of infectious diseases. The Board is committed to providing researchers with the resources and tools necessary to address public health emergencies effectively. 

We would like to acknowledge La Tempesta for their incredible technical support developing the Central Data Repository. 

This work is part of the VERDI (101045989) and CoMeCT (101136531) projects, which were funded by the European Union.  

Views and opinions expressed are however those of the authors only and do not necessarily reflect those of the European Union or the European Health and Digital Executive Agency. Neither the European Union nor the granting authority can be held responsible for them.